To connect, support, and inform the Coffin Siris Syndrome community and to promote related research.
Coffin-Siris Syndrome Foundation is run by volunteers affected by Coffin-Siris Syndrome (CSS). We exist to care for this community and support research that furthers the understanding of this rare syndrome.
We are committed to running with minimal overhead in order spend every dollar possible that we receive to connect and support people affected by Coffin-Siris Syndrome. As of January 2018, we are a 501(c)3 non-profit in the USA from the IRS, meaning donations are tax deductible in the USA.
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Make checks payable to:
Coffin-Siris Syndrome Foundation
11611 106th Ave NE
Kirkland, WA 98034