©2019 by Coffin-Siris Syndrome Foundation

COFFIN-SIRIS SYNDROME FOUNDATION

To connect, support, and inform the Coffin Siris Syndrome community and to promote related research.

Coffin-Siris Syndrome Foundation is ran by volunteers affected by Coffin-Siris Syndrome (CSS). We exist to care for this community and support research that furthers the understanding of this rare syndrome.

DONATE

We are committed to running with minimal overhead in order spend every dollar possible that we receive to connect and support people affected by Coffin-Siris Syndrome. As of January 2018, we are a  501(c)3 non-profit in the USA from the IRS, meaning donations are tax deductible in the USA.

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DONATE ONLINE

Send your donation via Paypal

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SEND A CHECK

Make checks payable to:
Coffin-Siris Syndrome Foundation
11611 106th Ave NE
Kirkland, WA 98034

Coffin-Siris Syndrome Foundation was started in 2017 by a group of parents of kids with CSS. It is incorporated as a non-profit and all-volunteer run. See the Articles of Incorporation, Certificate of Incorporation, and 501(c)3 Acceptance Letter. Tax ID: 82-2116961. 

Of our 2018 expenses, 96% was spent on the conference. The 2019 budget is $20,000 with 50% for a conference, 25% for research, and over 17% for direct support of families.