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To connect, support, and inform the Coffin Siris Syndrome community and to promote related research.

Coffin-Siris Syndrome Foundation is ran by volunteers affected by Coffin-Siris Syndrome (CSS). We exist to care for this community and support research that furthers the understanding of this rare syndrome.

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DONATE

We are committed to running with minimal overhead in order spend every dollar possible that we receive to connect and support people affected by Coffin-Siris Syndrome. As of January 2018, we are a  501(c)3 non-profit in the USA from the IRS, meaning donations are tax deductible in the USA.

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DONATE ONLINE

Send your donation via Paypal. 

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SEND A CHECK

Make checks payable to:
Coffin-Siris Syndrome Foundation
11611 106th Ave NE
Kirkland, WA 98034

Coffin-Siris Syndrome Foundation was started in 2017 by a group of parents of kids with CSS. It is incorporated as a non-profit and all-volunteer run. See the Articles of Incorporation, Certificate of Incorporation, and 501(c)3 Acceptance Letter. Tax ID: 82-2116961. 

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We work hard to maximize the positive impact of every dollar that gets donated. In 2019 over 96% of the spending went directly to serving our mission for the CSS community with conference, research, meals, and other supports.

©2020 by Coffin-Siris Syndrome Foundation