©2019 by Coffin-Siris Syndrome Foundation

COFFIN-SIRIS SYNDROME FOUNDATION

To connect, support, and inform the Coffin Siris Syndrome community and to promote related research.

Coffin-Siris Syndrome Foundation is ran by volunteers affected by Coffin-Siris Syndrome (CSS). We exist to care for this community and support research that furthers the understanding of this rare syndrome.

​

DONATE

We are committed to running with minimal overhead in order spend every dollar possible that we receive to connect and support people affected by Coffin-Siris Syndrome. As of January 2018, we are a  501(c)3 non-profit in the USA from the IRS, meaning donations are tax deductible in the USA.

3K6A6927.jpg

DONATE ONLINE

Send your donation via Paypal. 

IMG_2843.jpg

SEND A CHECK

Make checks payable to:
Coffin-Siris Syndrome Foundation
11611 106th Ave NE
Kirkland, WA 98034

Coffin-Siris Syndrome Foundation was started in 2017 by a group of parents of kids with CSS. It is incorporated as a non-profit and all-volunteer run. See the Articles of Incorporation, Certificate of Incorporation, and 501(c)3 Acceptance Letter. Tax ID: 82-2116961. 

​

Of our 2018 expenses, 96% was spent on the conference. The 2019 budget is $20,000 with 50% for a conference, 25% for research, and over 17% for direct support of families.