CSS_logo_Color.png

To connect, support, and inform the Coffin Siris Syndrome community and to promote related research.

Coffin-Siris Syndrome Foundation is ran by volunteers affected by Coffin-Siris Syndrome (CSS). We exist to care for this community and support research that furthers the understanding of this rare syndrome.

20190412_043250000_iOS.jpg

DONATE

We are committed to running with minimal overhead in order spend every dollar possible that we receive to connect and support people affected by Coffin-Siris Syndrome. As of January 2018, we are a  501(c)3 non-profit in the USA from the IRS, meaning donations are tax deductible in the USA.

3K6A6927.jpg

DONATE ONLINE

Send your donation via Paypal

IMG_2843.jpg

SEND A CHECK

Make checks payable to:
Coffin-Siris Syndrome Foundation
11611 106th Ave NE
Kirkland, WA 98034

Coffin-Siris Syndrome Foundation was started in 2017 by a group of parents of kids with CSS. It is incorporated as a non-profit and all-volunteer run. See the Articles of Incorporation, Certificate of Incorporation, and 501(c)3 Acceptance Letter. Tax ID: 82-2116961. 

We work hard to maximize the positive impact of every dollar that gets donated. In 2019 over 96% of the spending went directly to serving our mission for the CSS community with conference, research, meals, and other supports.