©2019 by Coffin-Siris Syndrome Foundation

COFFIN-SIRIS SYNDROME FOUNDATION

To connect, support, and inform the Coffin Siris Syndrome community and to promote related research.

Coffin-Siris Syndrome Foundation is ran by volunteers affected by Coffin-Siris Syndrome (CSS). We exist to care for this community and support research that furthers the understanding of this rare syndrome.

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DONATE

We are committed to running with minimal overhead in order spend every dollar possible that we receive to connect and support people affected by Coffin-Siris Syndrome. As of January 2018, we are a  501(c)3 non-profit in the USA from the IRS, meaning donations are tax deductible in the USA.

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DONATE ONLINE

Send your donation via Paypal. 

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SEND A CHECK

Make checks payable to:
Coffin-Siris Syndrome Foundation
11611 106th Ave NE
Kirkland, WA 98034

Coffin-Siris Syndrome Foundation was started in 2017 by a group of parents of kids with CSS. It is incorporated as a non-profit and all-volunteer run. See the Articles of Incorporation, Certificate of Incorporation, and 501(c)3 Acceptance Letter. Tax ID: 82-2116961. 

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Of our 2018 expenses, 96% was spent on the conference. The 2019 budget is $20,000 with 50% for a conference, 25% for research, and over 17% for direct support of families.  

COFFIN-SIRIS SYNDROME FOUNDATION

  • Foundation

  • New Diagnosis

  • Engage

  • Research & Clinic

  • Board

  • Conference 2019 - Iowa, USA

  • More

    Foundation@coffinsiris.org

    970-367-7432