BOARD OF DIRECTORS AND ADVISERS
Shea is married and the father of three boys. Caleb, the oldest, has an ARID1B variant. They received his CSS diagnosis when Caleb was three. Shea is an engineer in product design in Seattle.
Brion is married with 2 children. Carter – his youngest – has an ARID1B variant. In his spare time, Brion enjoys riding motorcycles, UTV’s, and all things powersports related. His true passion, however, is his family. Together, they make their home in Salt Lake City, UT.
Yarixza Camacho is from Pasadena, Texas. Mother of 3 children, Alfredo Jr., Noe, Yarixza Reyna 15. Yarixza Reyna was diagnosed at the age of 9 yrs old with CSS with ARID1B variant. Yarixza is an owner of an accounting business.
DR. SAMANTHA VERGANO
Dr. Vergano is the Division Director of Medical Genetics and Metabolism at Children's Hospital of The King's Daughters in Norfolk, VA and an Associate Professor of Pediatrics at Eastern Virginia Medical School. Dr. Vergano also runs the the CSS clinic out of CHKD and serves as an adviser to our board of directors.