CSS Conferences have been hosted annually each summer since 2016 in a different location in the US. Each conference has been organized by local hosts and sponsored by the Foundation. 

Conferences in Europe and Australia have happened at less consistent intervals with varying levels of Foundation support. 


Frisco, Texas

Cancelled (was previously scheduled for June 26-28, 2020).

Because of the ongoing global pandemic and continued concerns about COVID-19, the 2020 CSS Conference has been cancelled.

The 2020 CSS Conference was to be combined with the biennial conference hosted by National Organization for Disorders of the Corpus Callosum ( We are deeply appreciative to our CSS Texas hosts as well as the NODCC who invested time and energy into this event.

We are optimistic about being able to safely convene in 2021. Details will follow as we get closer. Until then, stay safe and take care of each other.


Summer 2021

If you would like to learn more about what it means to host the CSS Conference, please contact us.


©2020 by Coffin-Siris Syndrome Foundation