top of page
Two parents hugging their child and smiling


Everyone in the CSS community has a story of how they searched for or were found by a diagnosis. Here is the story of one family


We look forward to hearing your story and sharing ours. Welcome. We have assembled a few resources for families with a new diagnosis. Please complete this web form and we'll be in touch.

Most new families have a lot of questions, so we've put together a FAQ document with answers to some common questions. 

bottom of page