©2019 by Coffin-Siris Syndrome Foundation

NEW DIAGNOSIS

Everyone in the CSS community has a story of how they searched for or were found by a diagnosis. Here is the story of one family

 

We look forward to hearing your story and sharing ours. Welcome. We have assembled a few resources for families with a new diagnosis. Complete this form to request resources

Most new families have a lot of questions, so we've put together a FAQ document with answers to some common questions.